Tag: dr henny

Case Closure Investigation: Autistic Adults in California

Case Closure Investigation: Autistic Adults in California

Doogri Institute

Autistic adults in California: Did you apply to get help from a State/Federal Program or a Non Profit organization that advertises employment supports for DD/ID or Neurodivergent people? 

If you are Neurodivergent and you experienced a case closure, where a generic social worker /case worker/ service coordinator/ nurse… terminated your support, we’d like to hear from you.

Kehinde Wiley, Equestrian Portrait of Prince Tommaso of Savoy-Carignan (detail), 2015. Oil on canvas.

Who we are: 

Our research is conducted in affiliation with the Doogri Institute, a non-profit founded by autistic people in service of autistic people. We specifically investigate consumer data to find patterns of abuse, neglect, and racketeering. If you have been disadvantaged with a case closure, we want to know what the ‘excuse’ was.

Overall, we have currently found that “noncompliance” is the top reason, “inappropriate language” or “grooming” as secondary, and the third most cited excuse in a case closure is a failure of the consumer to submit paperwork in accordance with program rules. 

Yes, I want to participate! 

CLICK TO LAUNCH THE FORM

  1. To participate in this California-based study, we will require an email from you that shares your case closure report. No worries — this form will send us an email with your upload. 
  2. We will extract the ‘excuse’ in our reply to your email. 
  3. Then, you will confirm that this is the data that you are submitting for our study. 
  4. Only then will your data be de-identified, and included in a database that blinds your information from the investigator(s) reviewing the database. 

Please begin by uploading your confidential case closure report, and await a reply from  info@doogri.org. Thank you for your help in cracking down on systemic failures of publicly funded programs. There is no compensation for your participation. 

Privacy Statement

As experienced researchers, we owe you complete privacy of your information submitted through our secure portal. If you have any questions or concerns, please email Dr. Henny Kupferstein at henny@hennyk.com

July 1, 2021 Self Determination started today!!!!

Doogri Institute
July 1, 2021
Self Determination started today!!!!
#AssistiveTechnology, #Pianolessons, and #AAC lessons are now a covered cost for disabled students of all ages.
 
Thanks to our tireless legislative activism, we now also offer a college success program.
By the people, for the people, always.
Don’t forget to book us for your budget consultancy — click http://www.doogri.org/SD to read more

Dr Henny’s Self Determination Peer Support for Consumers in California

Every week on Saturday, Sunday, 2:00 PM – 3:30 PM PDT

From Jul 03, 2021 to Jul 10, 2021

Dr. Henny Kupferstein (Host)

https://on.zoom.us/ev/AEk9TFGWBHgKtmrnsXRdVf0LVY2IgdF-9Kr8BYeoW6G4nMUNxgEzUVojtfoowiteUK8UFQM

Please Register: $1 per Zoom device. We will have captions enabled and chat for accessibility. We welcome AAC users. Send your feedback on your SDP process until today to info@doogri.org and we will discuss as peers. Say YES to Self Determination, say NO to misappropriation.

Did you know that the State Council is in charge of sharing information with the DDS Committee, but if one doesn’t want to share with the other, your Regional Center counselor will not have any actual concrete information to tell you?

Also, did you know that The Tarjan Center at UCLA, a University Center for Excellence in Developmental Disabilities, is supposedly responsible for reporting about the transition to Self Determination, but their research funding does not cover interviewing consumers directly?

Take a stand and show the state government that consumers and their families have been forced to research trials by fire, and suffer the consequences of misappropriation. We have a right to the $10-billion+ and today is your day to know how to access this. Until this process is not in compliance with the ADA, the Lanterman Act is not protecting us from labor law violations. We are being asked to do their job, but we are not allowed to collect $2,500 for our INDEPENDENCE!!! Join to discuss.

Share from:

Dr. Henny’s public facebook page https://www.facebook.com/HennyKupferstein/posts/1974213776079030

Self-Determination Families and Friends https://www.facebook.com/groups/2170109546432928 (pending moderation)

California Self-Determination Program Forum

https://www.facebook.com/groups/CA.SDP.Forum/posts/1003451660425849/

Share on LinkedIn

https://www.linkedin.com/posts/activity-6816531874169528320-IRoM

Share on Twitter 

https://twitter.com/HennyKtweets/status/1410766531382763524

Find all events on Zoom’s onZoom calendar

Donate to our organization

Links for Navigation

  1. Dr Henny’s Self Determination Peer Support for Consumers in California

  2. San Diego SDRC Self Determination Orientation with Regional Center, California
  3. The Politics of Self Determination and Regional Centers in California
  4. July 1, 2021 Self Determination started today!!!!
  5. Return to Doogri.org/SD for Self Determination

Dr Henny’s Self Determination Peer Support for Consumers in California

San Diego SDRC Self Determination Orientation with Regional Center, California

The Politics of Self Determination and Regional Centers in California

Dr Henny’s Self Determination Peer Support for Consumers in California

San Diego SDRC Self Determination Orientation with Regional Center, California

Doogri Institute

“I am a great example as being Independent living adult” ~ Gabriella Ledesma

Congratulations on attending your Self-Determination Orientation. The California governor approved $10.5 billion ($6.5 billion General Fund) for the Department and estimates that approximately 386,753 individuals will receive developmental services by the end of 2021-22.

In October 2013, California Governor Jerry Brown signed SB 468 into law creating a statewide Self-Determination Program that offers regional center consumers a voluntary alternative to the traditional system and more control over the services they receive and the individuals who support them. Starting July 1, 2021, all consumers can switch to Self Determination.

..but wait… For current regional center consumers, the budget will equal 100% of the amount of the total purchase of service expenditures made by the regional center during the past 12 months.

…um, so…If your case manager or regional center supervisor says that they are still (1) unsure and (2) “waiting to find out funding availability” and (3) not providing clear instructions, please write to us now. info@doogri.org

Here’s what is supposed to happen next for you.

We learned about an IF (Independent Facilitator). We asked if a consumer can get the $2,500 from the budget if they complete the work. According to district managers, you cannot pay yourself, and you have to pay others; there is no mention in the State order (Dec 2018) about this ad hoc prohibition.

We are looking into training our autistic clients to have job opportunities by becoming an IF for their peers! Stay tuned.

IF – Independent Facilitator

An IF is not required for your next step, but recommended. Their role is to sit in meetings with your R.C. team. They are supposed to negotiate rates and service codes for your budget. They can advocate for you to get the best possible budget based on what you know you need. If you expect your service coordinator to be sluggish, non-responsive, or cruel with their service agreement rate disclosures, then an IF is a good idea for you!

FMS – Financial Management Service

Informationfrom: https://www.sdrc.org/sdp

A Financial Management Service (FMS) is the only required service for participants in Self-Determination. You can find a list of the FMS agencies that San Diego Regional Center partners with here.

  • about 10 companies listed, check out the negative yelp reviews.

3 Different Models

There are actually 3 models available for Self Determination, but most agencies will offers 2.

  1. Bill Tier Model – very similar to traditional services with regional centers. They choose the agencies they know and make their own suggestions.
  2. Sole Employer Model – You choose your own agencies and personnel. The FMS responsibility is to collect the w-2 forms, calculate the tax withholdings, and send the paychecks. Consumer’s responsibility is to enter the GROSS rate, not the NET into the budget, since we pay the tax withholdings from the overall budget. The deduction is 14.8%. If you’d like to calculate that, you would have to say, “If you want $15 per hour, we will have to calculate 15*1.48 = 22.” $22 is then the gross rate entered into the budget.

The FMS will send you forms to complete, and set an appointment for your initial meeting.

  • We recommend that you ask for a zoom call and complete the forms together.
  • They will offer paper mail forms
  • they are amenable to digital processing for efficiency and disability accommodations.

Expand Your Network

  • Please join our email list (email us, list@doogri.org) to receive news, updates, call to action, and interact with other list members via email

Donate to our organization

Links for Navigation

  1. Dr Henny’s Self Determination Peer Support for Consumers in California

  2. San Diego SDRC Self Determination Orientation with Regional Center, California
  3. The Politics of Self Determination and Regional Centers in California
  4. July 1, 2021 Self Determination started today!!!!
  5. Return to Doogri.org/SD for Self Determination

Dr Henny’s Self Determination Peer Support for Consumers in California

San Diego SDRC Self Determination Orientation with Regional Center, California

The Politics of Self Determination and Regional Centers in California