We are fundraising to ask for your donation to sponsor our Autism research.
Every donated penny is used for paying Autistic researchers who are also offered Autistic mentorship and peer support to make a career of Autism research.
Nothing about us, without us.
If you donate a dollar today, we will be able to publish this study, to evaluate if we the Autistics can benefit from the type of research they do (rodent models?!)
Here’s a snippet, now let’s get it published! Here’s a snippet of our next study:
A noticeable trend of disclosure (e.g “author is autistic” or “autistic stakeholders”) is evident in affiliation claims with autistic people in authorship or study design, which also correlates with ___% use of identity-first language overall). Autism Speaks, the U.S. non profit notorious for their science funding initiative of the “disease metaphor” (Broderick, 2010), has more more recently attempted a form of disclosure in their “Community Involvement” section: “The lead author and co-authors work for a leading international organization advocating for the rights of people with ASD and their families. None of the authors are autistic, but the analysis was benefited through review from autistic advisory board members” (Karpur, et al., 2021). This community disclosure may be a strategy to gain favor of the autistic consumers, given that they authors declared no funding but all authors are declared as affiliated with Autism Speaks. Since autistic people and their allies have published recommendations for participatory action methods to be considered, researchers may have considered creative ways to employ these recommendations, which must be monitored for their motives.
- Broderick, A. A. (2010). Autism as enemy: Metaphor and cultural politics. In Handbook of cultural politics and education (pp. 237-268). Brill.
- Karpur, A., Vasudevan, V., Lello, A., Frazier, T. W., & Shih, A. (2021). Food insecurity in the households of children with autism spectrum disorders and intellectual disabilities in the United States: Analysis of the National Survey of Children’s Health Data 2016–2018. Autism, 25(8), 2400-2411.
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